Category Archives: Trigeminal neuralgia

Move ’em on, head ’em up, Head ’em up, move ’em out

This whole “lead a normal life” regimen is really hard.  So far I am mid-transition with my medication which means I am getting the sharp face punches more frequently.  The good news is they last a very short time and I am learning to breathe through them.

Still, the only way I can keep on with the normalcy prescription is to just keep moving.  The first day I cleaned my entire living space from head to toe, reorganized my files and office, cleaned my son’s space, washed and folded laundry, waked to campus, taught class, then hung out with the kids, doing homework and such until bedtime.  Ten o’clock, my chosen bedtime, has never been so happily greeted.

The second day I spent in search of the icky cat pee smell and spent two hours scrubbing hardened cat resin off of various parts of the house where my twelve year old had failed to sweep up spilled litter when changing the catboxes.  Afterward I mopped assiduously. For exercise I spent 45 minutes on the exercise bike. Finally, I worked for a few hours, cooked dinner and did dishes before helping the kids with schoolwork, baths, and bedtime.

By the time the third day rolled around I had the hardest time getting moving.  Every step seemed a struggle and every action a burden.  All I wanted to do was lie in bed and watch t.v. or sleep.  Instead, I got up.  I got the kids ready for school, made myself breakfast, and did thirty minutes on the exercise bike.  I worked, applied for jobs, reviewed my current cases and did laundry.  After school I took Marlena to the doctor for a knee injury at school and once home ran errands for her and made sure she was comfortable.  When she and Ollie left with their father I did rest some.

I keep thinking that if I just keep busy I will get used to it again.  I used to have tons of energy and was able to handle dozens of complicated things every day while still managing to be a good parent.  I even did this with migraines.  Heck, I’ve had ’em since I was 12, so learning to cope with them was  a necessity.  I succeeded through law school with more than 16 headache days a month and a small child.

Still, despite the prescription to just keep moving, I can feel the tiredness pouring from my body.  It’s inclination to lie down and sleep is powerful, fed in part by the three or four different medications I am on that cause drowsiness.  At this point, it’s sheer will, stubborness, and the love of those around me that keeps me going on this new lifestyle change.

Fake it ’til you make it.

That is basically my new medical plan.  For now at least.  It turns out the fancy drugs they gave me to assist in fighting off the shadowboxer caused suicidal ideation.  Long term use of opiates does the same thing for me, so I am used to randomly being ready to hang up the towel when my brain chemistry is altered by various medications.

So I called my doctor and used the magic words.  “Dear Doctor So and So, I want to drop a piano on my head. Please advise”.  I had an appointment the next morning where he took me off all my currents medications and started me on all new ones.  He also ordered the following:

Go to sleep at the same time every night.

Wake up at the same time every day.

Eat breakfast, lunch, and dinner at about the same time every day.

Exercise every day.

Work at the same time every day.

He basically ordered a “Fake it ’til you make it” prescription.  I started it yesterday.  It was grueling.  I wanted to fall asleep at noon, so instead I spent two hours cleaning.  I ended up going to bed at ten.  Ten took forever to get here.

So, today I woke up to get the kids to school. Stayed up after seeing them off, made myself eat a healthy breakfast, and am now sitting down to work.  I assume someday this routine will reset my circadian rythyms and seem more natural, but for now, it feels a little like water boarding.  I keep forcing myself to keep doing stuff until it’s time to go to bed. 

 

Haiku Friday

Don’t leave me she said

as though reading in my face

the deep pain I hide.

Promise me she said

I need you to stay with me

You are strong enough.

I know it hurts mom

But you can do anything

You can fight this thing.

Promise me she said

promise me you will wake up

you will fight and win.

Promise me each day

you will keep pushing forward

you will grit your teeth.

You will not give up

If tired take the time to rest

If saddened cry.

Whatever you do

promise me you’ll stay with me

you are my best friend.