Tag Archives: #Fibromyalgia

Pining for a pandemic…

I’m a horrible human being.

I’ve been close to tears for the last several hours with no idea why.

I ran through all the usual suspects;
Did I eat?
Did I sleep?
Did I miss a medication?
Did I take too much medication?

I did all the fixes I could. The feeling remained. A vague sadness like a recent breakup or a friend moving away soon. Something ending.

Holy shit.

The pandemic.

I’m sad that the pandemic is ending.

I know. I deserve that.

I am not sorry that we are winning against a disease that killed hundreds of thousands of humans, shut down the world economy, and sent the world as we know it spiraling into a dark hole.

But I am sad that it’s ending.

You see, I have a secret.

The shutdown made many things easier for me.

I didn’t have social pressure to push beyond my energy level or risk losing friendships.

I didn’t have guilt that I couldn’t make social commitments.

No one had social expectations of me.

I was free of the social demands healthy people unknowingly impose on disabled people.

Even better, you were all living my life. My quiet, shut inside, have to figure out how to communicate with the outside world without actually going into it life. You were finally feeling what I felt. The isolation, the loneliness, the sense of being apart from everyone else.

Now you get to go back to normal… and I don’t.

I went into a grocery store today and most people weren’t masked, they were walking close together, fearless of getting close, en masse shopping for food. The parking lot was jammed with cars, the traffic there and home was jammed with cars. People were on the street, in the bars we drove by, gathering in large numbers again.

While I was returning home, still in my mask, to the room I spend most of my time in, once again doing the isolated thing without the mental company of the rest of world, once again the outlier.

The Pandemic is nearing its end but my disease is not. You will go back to a busy social life with gatherings and work and achievements and I will not.

For a brief period of time the pandemic gave me back a sense of belonging to the outer world, it let me feel just like everyone else.

Now that feeling is gone and I’m left feeling sad.

Sticking it to you…

I have been losing my mind with boredom as I have waited for my battered and confused body to return to some semblance of normalcy.

So I made stickers on this site that does’t charge too much for creating them! I made a bunch of Spoonie related stickers:

I plan on making more, but I got distracted by the cheating low-life scum-suckers in Georgia and the sheer criminal treason of passing a law making it illegal to hand out water to people waiting in line to vote.

Then I made a few motivation stickers and a Dr. Fauci one because my Mom asked me too.

Finally I added some of my artwork because I like the idea of having stickers of my work. I am sure I will be making more of those.

I have to admit it was nice to create something. It’s been a rough week. I spent most of it in so much pain and discomfort I wasn’t worth much. Now I can get up, walk around a little, cook a meal or two but I get really tired, really easily and I still have to spend most of my time resting.

So I am making stickers so I can stop losing my freaking mind.

If you like any of them I added a page to the menu at the top of the blog (Spoonie Merch). They are $3.99 each and are cut out vinyl stickers so there isn’t any extra outside of the image. In a few cases I approved a few other items too, but rarely. If for some reason you really want something in a shirt or hoodie or something kick me a message at misty@savvyspoons.com.

Stay safe and sane loves.

Dr. Fallible…

you listened to me
and when my body’s tale changed
you tried something new

saying they were just
words put on symptoms for the
insurance company

and not the be all
end all final sentence of
my one existence.

you treated my whole
not just the sum of my parts
saying it’s an art

not only a science.
when we fail to find a fix
we should always ask

are we looking right
where we should be or do we
need to start anew?

I’ve never met a
single other doctor quite
as lovely as you.

— mmorehead 03-04-21