Tag Archives: #Fibromyalgia

#chronicpain

WHY IS THE AIR SHARP?

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HOLY MOTHER OF HELL! WTF!?

There I was, managing my life with small nerve fiber neuropathy when BLAMMO suddenly one evening my hands and fingers felt like I was playing with slivers of broken glass anytime I touched anything.

This was not some gradual slide over time either. I work with my hands all the time. I use yarn, paper, glue, fabric, rocks, paints, cardboard, you name it. Usually I am fine.

Not this time. This time I’m folding my laundry and putting it away and then my socks are razor blades.

It – to understate it – sucked.

I took half an Ativan under the theory that it’s designed to send nerves into a coma and went to bed.

The next day I was a bit better though am definitely still more sensitive than I would like, all over really. I messaged my Doc and he asked “Have you been under more stress lately?”

Well duh, yeah, but knowing why I’m in a flare up doesn’t help me. You try to avoid stress when you are the disabled mother of a high school and college student, wife of a cop, and daughter/caretaker of two aging parents. It’s not like I get to just not be in stressful situations. In fact, trying to avoid them is like trying to keep cats out of a room, the harder you work to keep them out the more they want to get in.

So now that we’ve acknowledged that being a vibrating ball of stress is kind of my daily life can we move on to management please?

Just me

Life Sentence

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sometimes my body feels more like a prison
then it does an instrument for my mind.
i feel trapped within it’s boundaries
too limited by the shattered confines.
there are too many things I cannot do,
too many places I cannot go.
too many times I have to live
when what I want to do is thrive.

sometimes I watch the world through the bars,
these everyday eyes in this routine face.
i seep desire and wistfulness
from these pores pinned in place.
i cancel all the plans i’ve made
and apologize to the ones who’ve stayed
to love the person who is trapped inside
this fleshy prison where i reside.

—- m.morehead 2022

#covid-19, COVID-19

Pining for a pandemic…

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I’m a horrible human being.

I’ve been close to tears for the last several hours with no idea why.

I ran through all the usual suspects;
Did I eat?
Did I sleep?
Did I miss a medication?
Did I take too much medication?

I did all the fixes I could. The feeling remained. A vague sadness like a recent breakup or a friend moving away soon. Something ending.

Holy shit.

The pandemic.

I’m sad that the pandemic is ending.

I know. I deserve that.

I am not sorry that we are winning against a disease that killed hundreds of thousands of humans, shut down the world economy, and sent the world as we know it spiraling into a dark hole.

But I am sad that it’s ending.

You see, I have a secret.

The shutdown made many things easier for me.

I didn’t have social pressure to push beyond my energy level or risk losing friendships.

I didn’t have guilt that I couldn’t make social commitments.

No one had social expectations of me.

I was free of the social demands healthy people unknowingly impose on disabled people.

Even better, you were all living my life. My quiet, shut inside, have to figure out how to communicate with the outside world without actually going into it life. You were finally feeling what I felt. The isolation, the loneliness, the sense of being apart from everyone else.

Now you get to go back to normal… and I don’t.

I went into a grocery store today and most people weren’t masked, they were walking close together, fearless of getting close, en masse shopping for food. The parking lot was jammed with cars, the traffic there and home was jammed with cars. People were on the street, in the bars we drove by, gathering in large numbers again.

While I was returning home, still in my mask, to the room I spend most of my time in, once again doing the isolated thing without the mental company of the rest of world, once again the outlier.

The Pandemic is nearing its end but my disease is not. You will go back to a busy social life with gatherings and work and achievements and I will not.

For a brief period of time the pandemic gave me back a sense of belonging to the outer world, it let me feel just like everyone else.

Now that feeling is gone and I’m left feeling sad.