And now we are eight…

Monkey turned eight today. We celebrated with small gifts from Otter, Daddy, and me, as her large gift and party are next weekend to accommodate out of town guests she wishes to have at her party.

Otter got her a CD Player, and a card. He picked the card out on his own, a fire engine that made real siren sounds, and wrote on both the card and the envelope with no help from his parents.

Otter writes on the envelope.

I made her a mix CD of some of my favorite songs, and some of her favorite songs, so I could stand to listen to them played ad nausem.

Lee got her the worlds largest Journal, and some really cool color pencils to write with per her request. Then we all went out to Earl’s on the 16th Street Mall for a steak dinner on the patio. It was surprisingly fun, as was the climbing of the addresses on the way back to the car.

Monkey and Otter climb on 410 17th Street.

Monkey is an O.

Then we came back to the house, munched ice cream, and got ready for bed. A pretty mellow birthday, saving the madness for the pirate extravaganza to come.

I am amazed, awed, and surprised at the person my girl has become. I found this picture from our camping trip to Kansas:

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Monkey patiently walks Otter back to Mom.
To me it speaks so clearly to the patience she has mastered over the past two years. She rarely has a harsh word for her brother, even in high 90 degree heat and sweat pants. Even when she is tired and cranky she will often be the one to take his hand and provide the extra care that makes his life a little sweeter than it would otherwise be. I do not always acknowledge how lucky I am to have such a patient young woman in my house, easing the way for all of us by taking the hand of our youngest family member, and calming him down. While I am quick to notice when her behavior causes problems for me, I am not always quick to notice when it eases the way, and for that my dear, I humbly apologize. You have made the past two years much easier by entertaining your brother upon many an occasion, by providing extra love and support for him, and by being his friend.

Monkey accepts yet another ride from Otter on his scooter.

She has grown more caring in other ways as well. When our dog Bella was sick, Monkey brought a book into the office and read stories to her to keep her company, so she wouldn’t be lonely and scared. It was very sweet.
Monkey reads to Bella

She is daring and brave and is not afraid to ask for what she wants in life. She wants to be a singer, for example, and ended up helping the band performing at my Inn of Court end of year party in exchange for a chance to sing with them. She helped the drummer set up and then got to sing “Old MacDonald” with them during their set. She was a little nervous and told me after that it was a lot harder singing into a microphone in front of so many people, but she got up there and did it, and never once faltered.

Monkey sings with the Jehovah's Waitress Protection Program.

She catches ladybugs and lets them crawl on her hands, frees drowning butterflies and places them safely in high up flowers so their wings will dry, rescues worms from rain puddles when we are out after a storm, and is generally good about relocating spiders to the outdoors when they surprise her in the bedroom or bathroom. She is becoming aware of the delicate nature of other things and seems eager to take care to preserve them. I am proud of her for being this careful about the world around her, even when I huff in frustration sometimes at the extra time these actions can often take.

Monkey watches a ladybug crawl on her finger.

We have had our issues this year for sure. She is stubborn and I fear I may need to have her hearing checked, or maybe clean her ears out more, or have my vocal chords checked, for she often seems to lack the ability to hear what I say.

However, despite the growing pains of seven, as my dear girl turns the corner towards eight she does so bearing the makings of a capital little woman. I am proud of who she is and I am proud of who she is becoming. What mother could ask for anything more?

I love you baby, Happy Birthday.

And it’s not Epilepsy after all…

So, after nine months of medical testing, and four months of medication induced hell, an exam from an independent source has determined I do not have Epilepsy.

Well shit.

The leading Epilepsy treatment center in the nation is located in my backyard, and thanks to the love and care of some of my friends from law school, and their dear parent who works at said center, I was able to get in to see a specialist well in advance of the normal six month wait most people have to follow to get seen. The doctor who saw me reviewed my records, tested me carefully, did a thorough history, and then announced that I do not have the dreaded Epilepsy.

What I have is a movement disorder, or basically, the worlds longest lasting hand cramp.

I do not have Epilepsy because my “seizures” jump from one side of my body to the other, without making a visit in between. I do not have Epilepsy because they can last for hours, instead of minutes.

This means I do not have to stay on this mind altering, taste altering, attitude altering, weight dropping, joint pain causing, misery enhancing, neuropathy causing, nothing seems to make me happy, anti-seizure medication for the rest of my life.

I am ramping down off of it as we speak.

I am still going to have my normal neurologist track my symptoms, just in case the other doctor got it wrong. However, everything she said made sense, and looked and sounded like sound science to me. My Epilepsy never acted like anything my Epileptic friends had gone through, and the medication had stopped helping a while ago. Oddly, Topomax is prescribed for movement disorders, so the fact that it helped initially makes sense. However, the other side effects I have make using it for me a bad idea.

So, despite being initially really mad that I had spent so long being in pain caused by medication for something I don’t have, I am cautiously optimistic. Hopefully whatever treatments are in store for the movement disorder are much better than the treatments I am currently coming off of. Hopefully I can eventually get this under control and treat it with massage and yoga, otherwise known as lifestyle changes.

Hopefully this will actually be my final diagnosis.

We aren’t in Kansas anymore…

One Lawyer and two children drove off to Kansas to camp in Lake Scott State Park and shore up standing in an environmental suit I am filing later in the summer. We packed a tent, a king sized air mattress, a queen sized sleeping bag, a pile of camping food, dishes, camp stove, and other necessary gear.

We forgot the bug spray.

We remembered the hammock and the travel DVD player.

We drove 5 and a half hours, with over 7 stops, through the wilds of eastern Colorado. We stopped at fast food places and gas stations. We stared in wonder at Kanarado, and signs for the largest prairie dog ever. We ate snacks, and I listened to Shrek, over and over again, and the kids paused and rewound favorite parts to get themselves through almost six hours in the car with nothing to look at but highway and wheat fields.

“Look kids, look at the lovely colors of the native prairie grasses! See all the pinks and purples! The silver sagebrushes and deep greens!”

“Look kids, cows!”

“Look kids! A baby cow!”

“Look kids! Horses!”

“Look kids! I see more cows!”

“Look kids! — “We know mom! Cows.”

There are only so many times you can look at cows before you are bored of them I suppose.

Finally after way too many hours in the car, and one wrong turn into some poor farmer’s wheat field courtesy of the GPS, We ended up at Lake Scott State Park. A beautiful, spring fed oasis on the western plains containing more species of grasses, birds, and reptiles than nearly any other place in North America. Oh yeah, and it’s hotter than a frying pan on a camp stove in July.

Once we got to the camp ground, things got a little, more interesting. My mentor and his lady love joined us at the camp site, and we chose a spot that prevented the children from launching themselves into the 100 acre lake without first running around a blockade of bushes, giving us adults a chance to prevent consistent attempts at drowning.

Jay and Nicole assisted in child watching while I set the tent up in the shade of a tree. Otter and Monkey ran around, investigating the surroundings, picking up Canadian goose feathers, and assisting me in finding tent parts.

Otter attempted to drive the car climbing up in the front seat each time the door was opened.

Once we were all settled in and the tent was set up I unpacked the car and Nicole noticed our bush enclosure was riddled with large clumps of poison ivy.

Crap, so much for letting the kids run free within the enclosure. Camping became a lot more preventative from that point forward, with shouts of “Otter! Don’t touch that please!” resounding throughout the camp. It only got worse once we lit the fire and added potential burning to the list of imminent harm.

It was hot. Blazing hot.  We were in a little valley in Kansas, so there seemed to be no wind (until later that night during the wind storm of death) and the sun beat down on us mercilessly. We ended up swimming in the lake far sooner than we expected to simply to get some relief from the heat.

The kids and I enjoyed swimming a lot after I convinced Monkey the lake water was not full of Crocodiles and was indeed shallow enough for her. Soon she was paddling around like a duck. Otter stayed glued to my hip the whole time, but was generally pleased  to be cooling down in the water instead of red-faced and miserable out on the sand. Nicole kindly took Monkey out further into the lake, and Jay swam out to the other side to investigate a nested cormorant.

We swam for ages and then dried off on the ancient playground by the swimming area. The playground reminded me of the many my brother and I enthusiastically visited during our youth while on the way to my grandparents farm in Eastern Colorado. There were creaky swings, a round-a-bout, and about three million tumbleweeds. Somehow, these rundown playgrounds are always more enticing to me than the fancier gadget filled ones we see all over the city today. Maybe it’s because seeing them meant freedom from restraint and a break from the car when I was younger, or maybe it’s because their memory comes with the sense of hot weather, dry earth, warm wind, and the awareness of a quiet deeper than any you can find in the city. The memory of the sun beating down on my back comes to me from years past, haunting me with the sound of rusty chains attached to tire swings, and the constant squeak of the un-oiled hinges deep inside the round-a-bout, as my brother and I traded off the burden of running along in the well worn path, with the joy of being made sick to our stomachs in its center.

Monkey screamed in glee while Jay pushed the round-a-bout, and Nicole tried valiantly to hold onto Otter so he wouldn’t fly out and break an arm. Sadly, all she got for her consideration was an upset stomach and a screaming Otter.

Once we had satisfied the playing needs of our small charges we headed back into the camp to settle into dinner by camp stove and a night of marshmallow roasting, wine, and mead. While dinner was cooking, Monkey and Jay rescued a Monarch butterfly floating out on the lake, and Monkey held it aloft while Otter yelled “Me! Me!” and tried to get it out of her reach. Jay took over the cooking while Nicole took the kids over to some Queen Anne’s Lace and instructed Monkey in the proper way to safely place the butterfly on the flower so its wings would dry.

Once dinner was eaten and the dishes cleaned up we settled around the fire for marshmallow cooking. After painstakingly picking out sticks and sharpening their points, the kids decided they preferred the marshmallows un-roasted and proceeded to devour them at will. Having filled up on more of those than they did anything else I finally got them into the tent and to sleep. Of course, it took about an hour to do that, and Otter clinging desperately to me because our air mattress hadn’t filled up very well and every time we moved we careened into each other. The poor kid was terrified. However, exhaustion won over terror eventually and the late night hours found Jay, Nicole, and I trading life stories and future environmental plans over a dying fire, a fleet of bugs, and the remainder of the wine.

We dove for cover when the stars disappeared and the winds began to whip into our tents in a rather epic manner. Reminded of the thunderstorms experienced back home of late, I gathered all the remaining belongs at the front of the tent, tucked them inside, and dashed into the tent to ready myself for a horrible rainstorm.

It never came.

Instead, I was jerked awake all night by intense and violent winds whipping at my rain flap. The tent shuddered and shook, and Otter woke randomly, to sit up, bleat like an angry baby dragon, and crash into my lap. Monkey would kick Otter and I throughout the night as the noisy wind woke her enough to make her toss and turn. I woke up again and again prepared to batten down the rain-flaps, left open to cool the tent in the still oppressive heat, only to discover each time that there was still no rain, only wind. Finally, around five in the morning, it cooled enough to close the flaps and the wind died enough to calm the babies. We slept.

We awoke bundled in a heap, roasting like bacon, and blinking blearily at each other. We scrambled out of our jammies, tossed on clothes, changed diapers, and began the morning routine. For me, that included breaking down a tent that would not continue to stay put in the wind without us in it.

Then, breakfasted and packed up, we wandered off in search of beetle habitat, the purpose of the trip in the first place. We drove to the spring wherein our endangered species was supposed to lie, and, avoiding the poison ivy lacing the trial, hiked along its habitat enjoying the view and the morning.

First we came upon the bridge under which the beetle lives, and snapped photos of it (the bridge, not the beetle) We didn’t walk along it, as we did not wish to imperil either the beetle, or ourselves, by carelessly wandering through the rocky, and aged, habitat.

The Riffle Beetle Habitat
The Riffle Beetle Habitat

We hiked above the bridge on the neighboring nature trail, which was cool and lovely, though quite overgrown with spiny nettle and poison ivy. Monkey was wearing pants, but Otter had to hitch a ride on Jay’s shoulders, as his fat baby legs and arms were exposed to the plethora of poisonous plants growing in abundance around us.

The spring fed pond from the nature trail above the bridge.
The spring fed pond from the nature trail above the bridge.
Poison Ivy grows over the hiking trail.
Poison Ivy grows over the hiking trail.

At the end of the hike, we looked around the pond and Monkey inspected some rocks. The habitat, at the other end of the spring, was in no danger from her scientific inquiry here, so Jay and Nicole helped her apply her magnifying glass to a few slimy rocks and river bed critters.
Otter, less interested in viewing slimy insects and more interested in being down and free, watched the inquiry from a few feet away, occasionally investigating the butterflies alighting about.

Jay, Nicole, and Monkey search for critters
Jay, Nicole, and Monkey search for critters
Otter watches the science team from afar.
Otter watches the science team from afar.
One of Otter's butterflies
One of Otter
The Oasis
The Oasis

After our habitat adventure was completed, we drove back to the lake for another swim, and then ended our camping adventure with peanut butter and honey sandwiches and fresh water. Then, we took the long drive back into Denver, this time with me listening to Aladdin the whole way home.

Oddly, despite the bone weary exhaustion that struck me upon returning, the tick that attached itself to my right hip somewhere between the last swim and home, and the constant vigilance required by camping with small children, I would actually do this again.