A little something …

One of the ways I distract from pain is to create and one of the ways I keep myself sane is to clean (thank you OCD) so my more recent set of creations is the Tome of Treasures.

It’s a journal designed to help me declutter. Because I tie memories to items and even though I am very, very good at only keep things I am emotionally connected to I am also very, very good at connecting emotionally to things.

So I get overwhelmed and my space fills up and then I try to determine what “sparks joy” and everything does so I cry.

So I made a different way.

My first edition, the Garden edition, is 50 pages of different floral backgrounds on a creamy white with gold trim. A pretty place to capture the memories of how and where you got something, a picture of it, who is connected to it, any story behind it, and finally, what you did to part with it.

My second edition is the Wonderland Edition and it features the original images from Alice in Wonderland and Through the Looking Glass, on a red and white card themed background.

Both editions are designed for printing at a Staples, or Vistaprint, or similar printer and are justified for a 3 ring binder. I have uploaded them onto Gumroad and am sharing them here because I realize I am not alone in both connecting to inanimate objects and in feeling overwhelmed by owning too many of them.

I had originally intended to sell these as bound books but I don’t think they will work very well unless I find someone who will do them as a loosely bound spiral notebook. After all, you are supposed to be pasting images of your treasures into each page so traditional binding wouldn’t work very well.

If you are interested in checking them out you can visit my GumRoad Profile here: https://savvyspoonie.gumroad.com/ or you can click on the buttons on the content sidebar.

Breathe in…

Every morning I awaken into a body that turns on it’s systems – an inevitable pain signals – in a slow and drowsy way. I come to full consciousness about the same time my headache comes fully online, the pound-pound-pound in the back of my skull as familiar to me as breathing.

Then I notice the light streaming in the window, whether it’s soft or bright, shadowed by storm clouds or shifting from wind through spring leaves.

Most mornings there is a soft, wet dog nose pushed impatiently against my face, snuffles and softness rousing me from sleep. Sometimes there is a hot cup of coffee and the warm, firm hand of my husband on my shoulder as the mattress dips with his weight beside me.

I eventually make it downstairs and out to the cold plunge where a few rude seconds of shockingly cold sensation relax into 10 or so minutes of soaking while I watch the birds fly to and from the branches and the feeders or listen to the squirrels tell off the chickadees.

I watch the dappled sunlight and feel the breeze and let the cold, icy water sink into my bones as I contemplate another day in a body that spends as much time trying to kill me as it does trying to live.

I rise, and often as not rinse in the hose, showering off with garden friendly shampoo and conditioner in my swimsuit so my brand new pussy-willow tree can have more water.

I notice the small changes in the temperature, the birds, the season. I hear my neighbors call out to my pets in their porch window as I rest. I hear the sounds of the neighborhood, dogs, music, sirens, people.

It passes over me, through me, around me.

On good days I find occupation; cleaning, shopping, cooking, organizing, arranging, pet-washing, walking, physical therapy, art, candle making, sewing. On bad days I find distraction; reading, t.v., movies, art, sewing.

I tire, always sooner than I want to. My energy lags, my aches intensify. My body gives me the signals I ignore at my peril and I set down whatever I am doing and begin to end the day.

Breathe out.

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Folding in on myself…

I feel as though I am folding in on myself, choosing myself for company and comfort more and more.

I do have my family and spouse and ever since my friend moved in with us I have felt little to no need to leave the house for companionship.

She, like me, lives in a body with designs on a difficult existence and I find the comfort of sharing life with someone who really gets it so fulfilling I fear my inner goblin has begun to take me over.

It’s just hard, you see.

Hard to live each day in a body that simply never lets you forget that you are supremely fucked.

I never feel good. I haven’t felt good in over 13 years.

I feel less bad sometimes.

I have amazing experiences that push the less bad into the background sometimes.

I’m really good at giving the appearance of doing pretty damn ok.

But I hurt. Somewhere. A lot. All the time.

I’m even improving and getting off medications and having wins and I’m still hurting all the time. Just, less.

SO yeah. It’s really hard to carry all that around all the time and then go somewhere with people who love you and NOT just dump it on them every single time you see them.

So I don’t. I talk about ANYTHING else.

Then I feel like I am not talking about the thing that most impacts my life and that nobody really knows me anymore.

Then I feel like who could really want to know me when what I have to talk about is just hurting all the time?

So I fold in on myself. I choose my own company.

I choose my own comfort.

Managing life with chronic illness requires savvy spoons