Missing Something

March 9, 2026 Savvy Spoonie Leave a comment

I pat my pockets absently for the item I’ve forgotten, rummaging through the detritus on the desk, the overflowing “in case of” items in my bag.

I’m missing something.

I go back upstairs to see if I left it there but nothing catches the faint haunting thought in my brain. Wallet yes, keys yes, gloves yes.

What is it?

I check the bathroom as I often leave things sitting on the windowsill or sink, set aside during teeth brushing or other ablutions.

Nope.

I’m out of time. Whatever it is, I hope I really don’t need it because I’m going to have to leave without it. I open the door, step out onto the porch and freeze.

It’s you.

I’m missing you.

Your absence in my life is still enough of a novelty to send me off in a flurry of activity searching for whatever it is that will make me whole, because I simply never am.

A tear escapes my eye, chased down my cheek by an eager sibling.

Deep breaths.

I don’t have time for grief today.

———— SavvySpoonie 2026

Chronic pain, disability, Spoonie

A new approach to chronic pain.

February 3, 2026 Savvy Spoonie Leave a comment

I’m scared.

Despite being reassured that this disease doesn’t directly cause muscle weakness I’m seeing post after post about my fellow SFNers losing muscle strength.

I have days when my legs feel weak and wobbly, when my hands would rather throw things than grasp them.

I don’t want to lose my mobility.

So I’m going to get moving. Every day.

Regardless of how I feel I’m going to move. I have a vibration plate for days when all I can do is stand there, a rock stepper for days when I can do more, an infinity hoop to work out my core, a GI Board for balance, and a tiny new thigh master thingy for those days when I can’t get out of bed.

I also, of course, have my dog. He prefers the long walks around the neighborhood but those require good days.

Every day I have to do something though. No more doing nothing.

This body of mine is a complex machine that needs more maintenance than most and I’m going to maintain it.

So I apologize in advance for any Spoonie Workout posts. Just know I’m not affiliated with anybody so any recommendations are because I actually use the thing. If I ever get lucky enough to be affiliated with someone I’ll tell you up front.

We don’t have the luxury of waiting to get better.

There is no better.

This is it.

So get moving.

#tired, America, conservation

Use what you have…

January 25, 2026 Savvy Spoonie Leave a comment

An attempt to withdraw from knee jerk capitalist self-soothing.

They work us long, hard hours at less than generous wages so when we have free time we spend our money on things that feel like luxuries to reduce our stress, anxiety, and depression.

What we need is time together, time in nature, time creating things, and so much less stuff.

Not a popular opinion.

As a woman whose Mother has had to hire two dumpsters and two junk removal teams to dig out of my Father’s lifetime of consumerism I’m taking the lesson to heart.

This is the year I begin to use what I have in earnest. Repurposing what I can, trading what I can’t, and donating what I don’t need and what I don’t love.

I can sew a little bit by hand so instead of new things this year I’m refreshing my old things with needle, thread, and things I won’t wear anymore. YouTube and Google have all the free teachers I require .

Cardboard boxes make great storage and fabric and glue make them as pretty as any you can buy at IKEA, it’s not like the Drona boxes are made of anything else.

Handmade food wraps and wax wraps replace store bought plastic wrap and reduce waste. If you don’t want the hassle of pine resin in your wax wrap recipe rubber bands or nylon hair ties will hold these reusable items closed just as well.

I’m tired of living in a world that tells me I have to spend all my time working to afford the next brightest toy. I want to spend my time with my family, my friends, my dog, and the natural world.

For as long as we still have one.