A new approach to chronic pain.

February 3, 2026 Savvy Spoonie Leave a comment

I’m scared.

Despite being reassured that this disease doesn’t directly cause muscle weakness I’m seeing post after post about my fellow SFNers losing muscle strength.

I have days when my legs feel weak and wobbly, when my hands would rather throw things than grasp them.

I don’t want to lose my mobility.

So I’m going to get moving. Every day.

Regardless of how I feel I’m going to move. I have a vibration plate for days when all I can do is stand there, a rock stepper for days when I can do more, an infinity hoop to work out my core, a GI Board for balance, and a tiny new thigh master thingy for those days when I can’t get out of bed.

I also, of course, have my dog. He prefers the long walks around the neighborhood but those require good days.

Every day I have to do something though. No more doing nothing.

This body of mine is a complex machine that needs more maintenance than most and I’m going to maintain it.

So I apologize in advance for any Spoonie Workout posts. Just know I’m not affiliated with anybody so any recommendations are because I actually use the thing. If I ever get lucky enough to be affiliated with someone I’ll tell you up front.

We don’t have the luxury of waiting to get better.

There is no better.

This is it.

So get moving.

#tired, America, conservation

Use what you have…

January 25, 2026 Savvy Spoonie Leave a comment

An attempt to withdraw from knee jerk capitalist self-soothing.

They work us long, hard hours at less than generous wages so when we have free time we spend our money on things that feel like luxuries to reduce our stress, anxiety, and depression.

What we need is time together, time in nature, time creating things, and so much less stuff.

Not a popular opinion.

As a woman whose Mother has had to hire two dumpsters and two junk removal teams to dig out of my Father’s lifetime of consumerism I’m taking the lesson to heart.

This is the year I begin to use what I have in earnest. Repurposing what I can, trading what I can’t, and donating what I don’t need and what I don’t love.

I can sew a little bit by hand so instead of new things this year I’m refreshing my old things with needle, thread, and things I won’t wear anymore. YouTube and Google have all the free teachers I require .

Cardboard boxes make great storage and fabric and glue make them as pretty as any you can buy at IKEA, it’s not like the Drona boxes are made of anything else.

Handmade food wraps and wax wraps replace store bought plastic wrap and reduce waste. If you don’t want the hassle of pine resin in your wax wrap recipe rubber bands or nylon hair ties will hold these reusable items closed just as well.

I’m tired of living in a world that tells me I have to spend all my time working to afford the next brightest toy. I want to spend my time with my family, my friends, my dog, and the natural world.

For as long as we still have one.

America

In the heart of the “new” America

January 12, 2026 Savvy Spoonie Leave a comment

I’m at some remove, being in Colorado where the full force of Trump’s attack on our freedoms hasn’t truly begun but we’re just waiting. As the untrained, uneducated, and at times unhinged thugs he hired as his gestapo grow increasingly willing to murder American citizens in public and on camera there is a tightness in the air around us.

Don’t read the comments could be a prayer as well. If you want your soul to die read a story about a fellow citizen being murdered by a federal agent and then see the long line of mental gymnastics people will do to make it ok.

Nothing here is ok.

We are watching the death of the country we were born into and even worse, the dream of the future. Everything is being sold to the highest bidder as fast as he can get his greedy little hands on it. A wealth of environmental beauty torn apart to feed the endless hunger of a man who will never have enough.

Some of the people are fighting but others are embracing this madness. Then there are the ones who love to tell those of us who are fighting that there is no point because we reinforce the machine. What are we supposed to do? Nothing?

No, I am not doing nothing. I am not capable of doing much but when it comes time for me to be dragged to a concentration camp I will have spent the time until then fighting.

I just don’t see how people can’t see it. Then I remember, they probably can.

The fact is, if someone is still bending over backwards to make this administrations action ok then they are the bad guys. They are complicit. They want this.

The number of sirens I hear through my window every night seems to be increasing. I don’t know if that’s just a city responding to an ever increasing tension or if there’s more going on than I can see but it certainly adds to the tightly wound sensation that things are not ok here.

Thank god my Dad is no longer here to see this.