Tag Archives: #spoonielife

Pining for a pandemic…

I’m a horrible human being.

I’ve been close to tears for the last several hours with no idea why.

I ran through all the usual suspects;
Did I eat?
Did I sleep?
Did I miss a medication?
Did I take too much medication?

I did all the fixes I could. The feeling remained. A vague sadness like a recent breakup or a friend moving away soon. Something ending.

Holy shit.

The pandemic.

I’m sad that the pandemic is ending.

I know. I deserve that.

I am not sorry that we are winning against a disease that killed hundreds of thousands of humans, shut down the world economy, and sent the world as we know it spiraling into a dark hole.

But I am sad that it’s ending.

You see, I have a secret.

The shutdown made many things easier for me.

I didn’t have social pressure to push beyond my energy level or risk losing friendships.

I didn’t have guilt that I couldn’t make social commitments.

No one had social expectations of me.

I was free of the social demands healthy people unknowingly impose on disabled people.

Even better, you were all living my life. My quiet, shut inside, have to figure out how to communicate with the outside world without actually going into it life. You were finally feeling what I felt. The isolation, the loneliness, the sense of being apart from everyone else.

Now you get to go back to normal… and I don’t.

I went into a grocery store today and most people weren’t masked, they were walking close together, fearless of getting close, en masse shopping for food. The parking lot was jammed with cars, the traffic there and home was jammed with cars. People were on the street, in the bars we drove by, gathering in large numbers again.

While I was returning home, still in my mask, to the room I spend most of my time in, once again doing the isolated thing without the mental company of the rest of world, once again the outlier.

The Pandemic is nearing its end but my disease is not. You will go back to a busy social life with gatherings and work and achievements and I will not.

For a brief period of time the pandemic gave me back a sense of belonging to the outer world, it let me feel just like everyone else.

Now that feeling is gone and I’m left feeling sad.

Sticking it to you…

I have been losing my mind with boredom as I have waited for my battered and confused body to return to some semblance of normalcy.

So I made stickers on this site that does’t charge too much for creating them! I made a bunch of Spoonie related stickers:

I plan on making more, but I got distracted by the cheating low-life scum-suckers in Georgia and the sheer criminal treason of passing a law making it illegal to hand out water to people waiting in line to vote.

Then I made a few motivation stickers and a Dr. Fauci one because my Mom asked me too.

Finally I added some of my artwork because I like the idea of having stickers of my work. I am sure I will be making more of those.

I have to admit it was nice to create something. It’s been a rough week. I spent most of it in so much pain and discomfort I wasn’t worth much. Now I can get up, walk around a little, cook a meal or two but I get really tired, really easily and I still have to spend most of my time resting.

So I am making stickers so I can stop losing my freaking mind.

If you like any of them I added a page to the menu at the top of the blog (Spoonie Merch). They are $3.99 each and are cut out vinyl stickers so there isn’t any extra outside of the image. In a few cases I approved a few other items too, but rarely. If for some reason you really want something in a shirt or hoodie or something kick me a message at misty@savvyspoons.com.

Stay safe and sane loves.

Managing life my lily white ass…

It’s on my blog header, it’s in my whole cheerful outlook. Let’s manage life with this chronic illness!

Look at all my coping tools!

See my shiny things!

Well right now my illness is managing me.

And let’s face it, I’m in my mid-forties. My ass isn’t all that lily-white either. I mean, we’re in the middle of a no-end-in-sight pandemic and I haven’t been outside in a bikini since the idea of meaningful political discourse was an actual thing but my ass is more of a sickly ghostly pale, not a lily white. It’s not some semi-romanticized flowerly white, it’s a “DEAR GOD WOMAN GET SOME SUN ON THAT THING WON’T YOU!!” pale white you can see deep down veins through.

I’m sick.

Really, really sick.

I hurt everywhere, I can’t sleep. My once soft and comfortable ergonomic pillow has developed claws or teeth or maybe someone broke into my room and stuffed it with broken glass or something.

My whole fucking bed is made of discomfort. There isn’t a single comfortable position I can sit, lie, stand, or lean in. Every single miserable muscle and bone in my body hurts. I swear to the Goddess the bed is subtly shifting at night, moving me around every time I get the slightest bit comfortable.

The nerves in my hands and feet are tingly and itchy and on fire and somehow cold and stabby. Oh, and throbbing, and pulsing.

The Topomax isn’t killing my ability to think like it did before but I still have a really sore throat every day and that vaguely feverish feeling, like deep bone-aches and an overall sense of doom and gloom.

I’m miserable.

There’s no shiny sticker for me to put on it.

Right now there’s no managing it either.

There’s just getting through it and hoping it feels better, or at least different, tomorrow.

Stay safe loves.