Tag Archives: #spoonielife

Folding in on myself…

I feel as though I am folding in on myself, choosing myself for company and comfort more and more.

I do have my family and spouse and ever since my friend moved in with us I have felt little to no need to leave the house for companionship.

She, like me, lives in a body with designs on a difficult existence and I find the comfort of sharing life with someone who really gets it so fulfilling I fear my inner goblin has begun to take me over.

It’s just hard, you see.

Hard to live each day in a body that simply never lets you forget that you are supremely fucked.

I never feel good. I haven’t felt good in over 13 years.

I feel less bad sometimes.

I have amazing experiences that push the less bad into the background sometimes.

I’m really good at giving the appearance of doing pretty damn ok.

But I hurt. Somewhere. A lot. All the time.

I’m even improving and getting off medications and having wins and I’m still hurting all the time. Just, less.

SO yeah. It’s really hard to carry all that around all the time and then go somewhere with people who love you and NOT just dump it on them every single time you see them.

So I don’t. I talk about ANYTHING else.

Then I feel like I am not talking about the thing that most impacts my life and that nobody really knows me anymore.

Then I feel like who could really want to know me when what I have to talk about is just hurting all the time?

So I fold in on myself. I choose my own company.

I choose my own comfort.

Distraction art

Creative flow is one of the methods I use to distract from pain.

Yes, I know, I also would have punched someone in the stomach had they told me to distract from my pain with meditation or art or anything other than pain killers but then I learned I had a disease that didn’t respond very well to pain killers so, I had to try.

Turns out the brain is REALLY good at distracting itself from pain, so who knew?

So when I hurt badly enough that I can’t “normal” but not so badly that I am utterly flattened I turn to paints and paper to create myself some pain control.

Lately I have been using acrylic paint pens with brush tips. Here are some of my recent creations:

Handmade Holidays

I’ve fallen into the trash panda handmade holidays.

If I can’t use it for it’s original purpose anymore but I can keep it out of a landfill I’m making decorations or gifts out of it.

All of these involved hot glue, bamboo toilet paper tubes (they are nicer than regular ones) and fabric scraps, broken ornament scraps, or cardboard scraps. I even used some parfait jars!

These use clean socks missing their mates, clean extra filling from a pillow, and thread.

I’m also using my quilling supplies to make ornaments:

All in all I’m spending the day surrounded by craft supplies and animals, driving coffee and making little things out of forgotten stuff.

It’s putting the joy back into my holidays.