Getting better.

The slow inevitable decline of a progressive illness is hard to quantify especially when the illness in question gives you “good days” and “bad days” to begin with.

It can be difficult to notice the fact that it takes longer and longer to recover from the flu, or infusions, or too much physical activity.

The bounce back doesn’t dramatically swing from bouncy to flat. It’s more like a basketball, inevitably bouncing a little less high each time it hits the ground.

Right now I’m noticing my ball is flatter than it used to be. It’s taking me longer to recover from infusions, longer to get over colds. I run out of energy sooner on my good days.

It’s possible it’s a flare up. They can last for years after all. However it’s just as possible that I’m declining, slowly, incrementally, as my disease devours healthy nerve endings and my autonomic system loses coping mechanisms.

It’s scary and it’s depressing.

Today I’m struggling to find the silver lining.