Category Archives: grief

Pin Cushion

It’s been a hell of a week.

I went in to the doctor on Friday last for a Occipital Nerve Block, hoping that it, unlike the infusion treatment, would end the now two month long headache from hell.  The normally kind and non-torturing physician’s assistant took out a huge syringe with matching needle and shot me four times in the very base of my skull.  He claimed it wouldn’t hurt.  He lied.

The block was inordinately painful to receive.  I was swearing halfway through the first injection, blubbering through the second and by the third was sobbing quietly while trying desperately not to move my head.  He felt really badly for hurting me so and got to the point where he was murmuring my name and patting my shoulder awkwardly between shots.

Sadly, the pain was for naught.  The nerve block didn’t work at all.  I didn’t get a single minutes relief.  The headache from hell, which at this point really should be given a name and address, is still here.

On Monday I called and freaked out on the doctor’s poor receptionist.  My mom suggested I not be the ‘patient’ patient anymore and instead see how responsive my doctors are if I become the ‘crazy’ demanding patient. Unfortunately for my doctors’ future interactions with me, crazy demanding worked. I had tests scheduled the following day and a new treatment scheduled for today.

Today I get to have 34 botox injections in my face, head, and neck.  I am scared they will be as painful and as ineffective as a the nerve block.  Today I should also get my test results back.  I don’t know which to be more frightened of, a response telling me there is nothing they can find wrong with me, or a response finding the source of these headaches.

I certainly don’t want to have a brain tumor or odd swelling head disease or anything, but I also don’t want to spend the rest of my life being turned into a human pin cushion and guinea pig because no one can figure out how to cure me.

It seems deeply unfair that I would reach 38 and already know what it’s like to be really old.  Sick, unable to do what I want, always conscious of how much energy I don’t have to expend.  I should still be conquering the world, not trying to figure out how to survive it.

Hysterecto…me.

It’s been a long time since I blogged here.  Actually, it’s been a long time since I blogged anywhere, outside of a professional capacity.  I left because my life as a lawyer and a mom took all my time. I left because I no longer had the need to reach out into the internet and share feelings, thoughts, and experiences with everyone and no one.

I came back because the need arose in me strongly today.  Nine weeks ago today I had a full laproscopic assisted vaginal hysterectomy. A LAVH as the cool kids call it.  Nine weeks ago today a beautiful and brilliant surgeon went into my body and removed my uterus and remaining ovary.  They are gone, poof.

I had the surgery because I had serious recurring ovarian cysts.  Those painful suckers popped up on my ovaries and inside my fallopian tubes again and again.  I had one ovary and tube removed hoping it was the culprit, but a new cyst arrived two months after that surgery, so we yanked it all.

I am supposed to be happy about it.  I guess. I was in less pain the day after surgery than I had been in for years.  I should be relieved, ecstatic, excited.  Instead I feel loss. I feel empty. I feel irrevocably changed.

I don’t get periods anymore, I don’t get that slight contraction of the muscles I used to get when I saw brand new babies. I get my hormones from a bottle.  I read articles about “dryness” and “bone loss”.  A huge part of my life experience as a woman has traveled through time and stopped about twenty years in the future.  I feel old.

I look in the mirror and I swear I look different.  I see someone else.  This new me can’t have babies.  This new me waits for my mood to change around the full moon and stares up at the sky painfully aware there is no wave of hormones coursing through me.  I have lost my connection to the moon.

Initially, as the hormones disappeared and before the HRT (hormone replacement therapy) was balanced out, I felt crazy.  I had hot flashes and chills, I had no idea what temperature it was anywhere and I cried at the drop of a hat.  Now, months later, my hormones are stable, the hot flashes are gone, and my tears are less “out of nowhere” then before.

Now when I cry it is because I am reading an article on intimacy after hysterectomy and get angry that at 37 I this is my reading material.  I see an ad for a baby stroller online and cry because I went from fertile to barren overnight.  I see myself in the mirror and cry because I look hesitant, uncertain, less sexy than before.

I am sad. I grieve for the person I was before all these painful cysts and invasive surgeries.  I am angry, I am furious at the toll this has taken on my family, my work, my self.  I am at a loss.

I feel a bit like Tokyo after a Godzilla film. There is much to clear out, there is much to rebuild.  I have to figure out what this sudden and unnatural change means to me, I have to incorporate it, become used to it.

I think most of all, I have to let go.  I have to say goodbye to those annoying, painful, messy, expensive monthly visits I have had for the past 25 years.  I have to say goodbye to worrying about wearing white during certain times of the month.  I no longer belong to that club.

I will have to find another.

On with the new…

Three years ago today one of my closest and dearest friends, the man I termed my life partner for purposes of the bar exam, drowned in his apartment swimming pool.

Today three of his friends, three people deeply affected by his death, joined forces to build a successful business.

I can’t honestly say that we three would have been seated around a table today negotiating the terms for the merger of our fledgling firm with their established one if he hadn’t died three years ago. I can’t say our law school connection would have grown into the bond we have now without that shared loss.

So today, amidst a few tears and the shadow of sorrow, I toasted the future and realized that a decade from now this day will be as synonymous with our success and the brightness of our future as it has been for our shared sorrow over the loss of a comerade in arms.

To the future… and its roots in the past.