I’m scared.

Despite being reassured that this disease doesn’t directly cause muscle weakness I’m seeing post after post about my fellow SFNers losing muscle strength.

I have days when my legs feel weak and wobbly, when my hands would rather throw things than grasp them.

I don’t want to lose my mobility.

So I’m going to get moving. Every day.

Regardless of how I feel I’m going to move. I have a vibration plate for days when all I can do is stand there, a rock stepper for days when I can do more, an infinity hoop to work out my core, a GI Board for balance, and a tiny new thigh master thingy for those days when I can’t get out of bed.

I also, of course, have my dog. He prefers the long walks around the neighborhood but those require good days.

Every day I have to do something though. No more doing nothing.

This body of mine is a complex machine that needs more maintenance than most and I’m going to maintain it.

So I apologize in advance for any Spoonie Workout posts. Just know I’m not affiliated with anybody so any recommendations are because I actually use the thing. If I ever get lucky enough to be affiliated with someone I’ll tell you up front.

We don’t have the luxury of waiting to get better.

There is no better.

This is it.

So get moving.