Sometimes I feel as though I have nothing interesting to say because I am filled with this daily struggle to overcome a chronic illness. I listen to the words of the people around me and I feel as though I should sit back and remain silent.

I do have interesting things to discuss, stuff I am making, things I have read, places we have gone, and stuff I do at work, it’s just that these things are so much less impressive than they used to be. I am not the super-over-achieving vunderkind I once was. Further I have all these feelings about what is going on with me that really want to be heard yet I really don’t want to talk about my health.

In other words, I find myself being more comfortable as a wallflower, sitting by and watching everyone else live busy, successful live while I snuggle into my quiet cave and make jewelry or fascinators while listening to an inspirational TEDTalk.

The reality of my situation is frustrating. I am caught between disability and ability. I have the limitations of a disabled person yet my education, and my awesome office, puts in a position where I can earn more than disability benefits would pay me working a sustainable number of hours. I have spent most of the past year balancing between being just healthy enough to work enough to make some money and being just unhealthy enough to have serious conversations about going onto disability.

This limbo is why I hate the phrase “How are you?”. It’s become our version of “Hello!” so everyone says it at the beginning of every conversation at every social event I attend. The true answer is complicated and deeply personal. It’s not something I want to go into at a party. However, everyone knows to some degree that I am unwell so if find my words caught in my throat. All the things I want to say stick inside me and refuse to come out because I am terribly afraid I am boring everyone to death. I feel a palpable desire pouring off the person I am speaking with, a need for me to respond with anything other than the truth.

To be fair, I have no idea if this desire is actually there. It is completely possible I am making it all up. 

It’s enough to make even the most seasoned social veteran want to crawl back into that wallflower position, pick up a fan, and hide behind it. I feel like Miss Bates from Emma, possessing no cleverness and constantly at risk of rambling on about every dull topic in the world:

Well, I need not be uneasy, as long as we're allowed to say dull things.
Very dull, in fact. I should be sure to say things very dull in fact as
soon as I open my mouth, shan't I?

That may be a difficult thing.

Oh, I doubt that. I'm sure I never fail to say things very dull.

Yes, dear, but you will be limited in number, only three.

I suffer a fair amount of social anxiety as a result of my situation. Small gatherings make me more comfortable because I can spend time talking with people, we can get over the initial social niceties and dig deeply down into a topic of interest to all of us. At larger gatherings there isn’t time for the deep digging so I am left feeling shallow, in several senses of the term.

One thought on “Wallflower…”

  1. I think you should walk around with a fan at ANY social gathering and when it gets to a question you don’t want to answer, whip out the fan and flutter your eyelashes. An occasional “Oh, you!” and some fluttering will go a long way. Dissembling is a skill. 😀

    I love you.

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