It’s been a little over a month since my new diagnosis and I have been trying to remain active. Moving around is supposed to help me feel better but I think it’s just making me tired.

I’m ending my days so stiff I can’t even turn over onto my side without excruciating pain erupting all over my body. I start my days with a pounding headache, tight jaw, and aching hands and feet.

While I am moving around I feel okay but when I stop everything seizes up. I am pretty sure I actually turn to stone. Well, highly sensitized stone. I’m just not sure how to fix that part. I recognize that moving around makes me feel better but I am failing in finding a solution that keeps me moving all the time. Maybe I need some sort of robotic chair and bed system that moves my limbs around for me while I rest so the overall effect is that of always moving but I still get a chance to sleep and sit the fuck down.

Until I discover/invent such an apparatus I am stuck pulling myself up by the bootstraps each day and convincing myself that moving around all day is worth being rendered painfully immobile at night.