Category Archives: despair

1000 in a single day…

One thousand people
passed away in just one day
souls in flight and gone.

One thousand hearts stop
one thousand families cry
for just one more day.

Yet anti maskers
cry of lost freedoms, crowding
us closer to death.

Their loved ones will mourn
when they lie alone and dying
viruses don’t care.

Measuring life in hours…

It’s been a while since I posted about chronic pain primarily because I still feel like a whiner even on my own blog, somehow. I’m blaming German stick-to-it-ed-ness and the fact that my grandparents lived through the depression as farmers in the Dust Bowl and probably ate pickled tumbleweeds without complaint. They were the boss.

I have a new medication. It gives me about three hours of low pain twice a day. This is good news. I now have six hours a day where I can be productive in a way I haven’t been in a while. There are some side effects. I can’t concentrate very well and I get super tired. I forget things and get flustered and double book and am generally not the best friend in the world to anyone. However, I get six hours where I can crochet, or read, or do chores, or play with the kids. Six hours when I can see movies or friends.

I am not sure when I began measuring my life in hours. I suspect it started after Michigan when I first got medication that gave me some relief. All I do know is I now think of my days in terms of how many low pain hours I can get. Do I schedule a movie? A party? Dinner with a friend?

I am blessed to have these hours. I have far more hours now than I used to. I am also sad I don’t have more hours and envious of those who do. You healthy people with your bodies who don’t prevent you from being anything you dream of. You people who can be at parties all night, see any movie you want, go to a rock concert or night club. Your vibrant lives flash before me and make my previous self cry out in recognition and despair.

I miss you! She says. I used to be like you! I want to be like you again! 

You don’t measure your life in hours. You may not even measure it at all. I know I didn’t used to. I had the luxury of a limitless existence with nothing but my own ingenuity to stop me. Now I struggle to carve out a happy existence in a world increasingly defined by limitations.

I envy the freedom of your limitless hours even while I am happy you have them.

 

 

Despair

I’m so very tired. The only time I don’t have a headache is when I have had too much to drink. Even my sleep is invaded by the invisible drum chorus in my head, pounding endlessly like waves upon the shore, eroding my strength and forebearance.

There is no where to share my despair. All the compassion has been spent, I have exceeded my allowance.

This is never going to end.

This is never going to end and I am trapped inside it, alone.

I want to give up, to give in. To tell the pain it has won and just slide into its throbbing darkness. I want to sleep and never again battle the waking hour, never again force myself to rise and walk when each breath, each step, resonates in my head in an unending rhythm.

I want to wave the white flag and let my consciousness succumb to the overwhelming clashing of blood and vessel in my brain. I want to blithely sleep while the vessels constrict and gorge, over and over, the rhythm of my foolish heart playing it’s swan song for an audience of one.

I want to release it, vent it, let it go.

I want this to end.