Category Archives: health

Chronicals of Chronic Pain

If you had asked me ten years ago where I would be this certainly isn’t it.  I didn’t think I would be volunteering to spend weekends working on nature preserves.  I didn’t think I would be a college professor.  I certainly didn’t imagine I would be going through medically induced radical menopause.

It’s been a hard two or three years. Being chronically ill sapped all my creative energy, patience, and spirit.  I felt entirely alone, isolated to my fears, pain, and sorrow.  I don’t think I would have lived through it without my cat.  (She features strongly in my life, being of a mind to sit by or on me at ALL times.) My children were amazing, but I couldn’t ask small people to understand what I was going through. My husband did his best, but I learned that some times your partner can’t understand, chronic pain can kill a once strong marriage.  I learned that as the terrified and chronically ill person you can’t always forgive your partner when they can’t meet your needs. I learned anger and hurt are vast and seemingly limitless aquifers bubbling up underneath your heart. Many of my friends were wonderful sources of patience, love, and support during this hard time, but many others were absent, dealing with their own lives (and rightfully so.)  In the end it was a small handful of people and one furry animal that helped me climb out of the darkness to see the light again.  I learned a lot during the journey.

For example, suicidal tendencies are a side effect of opiate use.  I went from being a person who couldn’t fathom suicide to someone who thought about ways to do it all the time.  I couldn’t stop thinking about ways to do it.  Every possible sharp object in the house became a potential mechanism of destruction. I went to therapy, got on anti-depressants, but it wasn’t until I weaned myself off the opiates that the desire to swan dive off my rooftop balcony disappeared.

I learned to ask for help.  I learned pretending you can get through it on your own is a stupid, egotistical way to torture yourself and those who love you.  I learned to accept help, which is the harder lesson, with grace and thankfulness.  I learned to stop keeping score and tallying up how much I owed people for lending me a hand.

I learned that I can’t do everything I set out to do.  My once indomitable spirit is now aware that I can be beaten. There is a new timidity to my life as a result.

I learned that no matter how done you think you are having children, having that choice taken away from you will break your heart.  Further, it will eat at the very core of who you think you are and what you think you are worth.  I went from super fertile to menopause in a single day.  I am still, nine months later, trying not to cry when I stop and actually think that I will never have another child.  Each step my children take away from babyhood pricks my heart and makes me wish, just for a moment, that I could do it all again.  I cling to them and their waning childhood, desperate to catch as much of this time as I can, more aware than ever before of how fleeting it truly is.

I learned about menopause.  I began to understand why women wore moo-moos and why there can never be enough air-conditioning.  I watched my kids shiver under blankets in mid summer and wondered why on earth I was sweating.  I learned to stop wearing make-up because eyeliner and mascara sting like a bitch when sweat drips them into your eyes.  I understood how a person could indulge in one of those Hollywood laughing fits that quickly turns into a complete sobbing breakdown. I learned puberty hormones have nothing on menopause.

I learned that I miss my damn period.  I get ready to leave the house sometimes and look around for what I have forgotten, only to figure out it is my bloody annoying menstrual cycle.  I even get nostalgic when I see tampons.

I learned this is all too much to talk about when you are in the middle of it.  That in order to survive it, you have to hide away, pull inward, and nurse yourself.  I was a wounded animal hiding in my cave, waiting to heal.  I wanted very little to do with most people.  The thought of talking about how I felt was crushingly impossible.  I think my distance was off-putting to many, I believe it may have been hurtful, I had no control over it, at all.

Finally, I learned that there comes a time when all that you didn’t want to say starts to choke you.  You start to feel like this huge experience in your life is something no one else understands and then you realize it’s because you failed to tell them.  So here I am, telling them.

In the past 14 months I have had two abdominal surgeries.  I lost both ovaries and my uterus.  I am in menopause and dealing with killer migraines.  I am starting over, it seems from scratch.  I have to rebuild my body, my spirit, my career, my friendships, and my heart.  In the past nine months I have gone from a woman who couldn’t consider getting out of bed most days to one who gets up and about daily.  I walk, I swim, I bike.  I play with the kids, get them to school, do their homework.  I work.  I am picking up the threads of my former life and weaving a new one.  I am still worn from my ordeal, but I am hopeful for the first time in years.

I feel I have finally come through the darkest hour and into the dawn.

Hysterecto…me.

It’s been a long time since I blogged here.  Actually, it’s been a long time since I blogged anywhere, outside of a professional capacity.  I left because my life as a lawyer and a mom took all my time. I left because I no longer had the need to reach out into the internet and share feelings, thoughts, and experiences with everyone and no one.

I came back because the need arose in me strongly today.  Nine weeks ago today I had a full laproscopic assisted vaginal hysterectomy. A LAVH as the cool kids call it.  Nine weeks ago today a beautiful and brilliant surgeon went into my body and removed my uterus and remaining ovary.  They are gone, poof.

I had the surgery because I had serious recurring ovarian cysts.  Those painful suckers popped up on my ovaries and inside my fallopian tubes again and again.  I had one ovary and tube removed hoping it was the culprit, but a new cyst arrived two months after that surgery, so we yanked it all.

I am supposed to be happy about it.  I guess. I was in less pain the day after surgery than I had been in for years.  I should be relieved, ecstatic, excited.  Instead I feel loss. I feel empty. I feel irrevocably changed.

I don’t get periods anymore, I don’t get that slight contraction of the muscles I used to get when I saw brand new babies. I get my hormones from a bottle.  I read articles about “dryness” and “bone loss”.  A huge part of my life experience as a woman has traveled through time and stopped about twenty years in the future.  I feel old.

I look in the mirror and I swear I look different.  I see someone else.  This new me can’t have babies.  This new me waits for my mood to change around the full moon and stares up at the sky painfully aware there is no wave of hormones coursing through me.  I have lost my connection to the moon.

Initially, as the hormones disappeared and before the HRT (hormone replacement therapy) was balanced out, I felt crazy.  I had hot flashes and chills, I had no idea what temperature it was anywhere and I cried at the drop of a hat.  Now, months later, my hormones are stable, the hot flashes are gone, and my tears are less “out of nowhere” then before.

Now when I cry it is because I am reading an article on intimacy after hysterectomy and get angry that at 37 I this is my reading material.  I see an ad for a baby stroller online and cry because I went from fertile to barren overnight.  I see myself in the mirror and cry because I look hesitant, uncertain, less sexy than before.

I am sad. I grieve for the person I was before all these painful cysts and invasive surgeries.  I am angry, I am furious at the toll this has taken on my family, my work, my self.  I am at a loss.

I feel a bit like Tokyo after a Godzilla film. There is much to clear out, there is much to rebuild.  I have to figure out what this sudden and unnatural change means to me, I have to incorporate it, become used to it.

I think most of all, I have to let go.  I have to say goodbye to those annoying, painful, messy, expensive monthly visits I have had for the past 25 years.  I have to say goodbye to worrying about wearing white during certain times of the month.  I no longer belong to that club.

I will have to find another.

Now with less gluten!!

My mom told me she is being tested for celiac’s disease a few weeks ago. I didn’t know a lot about celiacs so I went to Google to learn more and discovered something very interesting.

All the utterly random things I have been seeing neurologists for since I turned twelve are side effects of celiac’s disease.

Migraines, carpal tunnel like symptoms, seizures, bone and joint pain, fatigue, tooth discoloration, abdominal pain.

So, given that I have had over a dozen MRI’s because of my migraines in addition to a wash of other tests and an incorrect epilepsy diagnosis I thought I might try and see if I have a gluten allergy. I had two choices, call my doctor and schedule an endoscopy or stop eating it and see how I feel. I chose the second.

I am in week number three and I am feeling a great deal better. My joints have stopped hurting, my headaches are less frequent and rarely approach the level of a migraine, my weird little thumb seizure appears less frequently. I have more energy and am sleeping better too, though that may have more to do with the fact that I can’t eat 95% of the crap available to me every day and am eating more healthily than it has to do with gluten. All I know is that I feel better all over, and not eating gluten has done what twenty-two years of medical science couldn’t.

The downside is a real pain in the ass diet. Gluten is in virtually everything. The upside is better health, and I am guessing a great weight loss plan and I can’t eat most fast foods, junk foods, and restaurant meals. I was really down when I figured out I can’t drink beer. I love to go to the Cheeky Monk and toss back a few belgian brews so I was really bummed when I first started. Happily I discovered Argonauts, a nearby liquor store, carries a wide variety of gluten free beer, including three belgian ale’s with solid flavors.

So, I raise a glass of Green’s Gluten Free ale and toast a future free of pain and gluten.