Category Archives: health

Weight…

There’s a certain heaviness to chronic pain. It’s an ephemeral heaviness, a constriction of muscles a healthy person might get in a P90X class or carrying their neighbor’s couch into the house for them.

The neck muscles are tight, the shoulders are tense, the back aches, all from a mixture of “guarding” – the act of holding your body in a particular way to avoid or minimize pain – or a lack of activity from feeling to ill to do much.

Over time it becomes a literal weight. You wake up in the morning and in order to get up out of bed you have to consciously choose to pick that weight up and carry it again. You can feel the lovely release of sleep slip away and the various and sundry physical alerts begin to wake up in your body.

Hey there, your head really hurts today. Maybe the weather is kicking up.

Hi, jaw here, just wanted you to know that we’ve got some extra tension from that really great conversation you had last night so you’ll see some extra stabby moments from us today.

Um… yeah, it’s your back. You did something, or maybe you didn’t -hell I just work here- but whatever the reason you will be having some difficulty moving around today. I’m going on break.

You’ll get up and agree to carry these issues again because the other option is don’t get up. An option I hear some people choose but I personally believe all us spoonies choose to get up more than we choose to give up. So you move on with your day, dressing, maybe showering, eating, and then you will have other weights fall on you.

Joints here, did you know you can sprain your wrist picking up a box of cereal in the “wrong” way? No. Well now you do.

As you move through your day you will feel heavier and heavier until at last you are able to place the nearly overwhelming weight of your maladies into bed for a few hours of rest. If you can rest. If not, maybe a few hours of a good book or movie.

Sometimes the weight is harder to carry than others. Right now, for me, with the recent death of my wonderful and amazing support cat, I am really struggling to lift it all. I haven’t lifted a paint brush since she died. I feel all the pain more intensely without her here to help. My mind races with anxiety and possibility and doubt and fear. There is no furry face in my face forcing a distraction.

Without her support I find myself at sea, having to find new ways to carry the weight with me throughout each day.

In the meantime each little addition seems more personal, more targeted to make my day difficult instead of just something I have to move through.

My patience is frayed, I am restless and uncertain, and my body continues to pile it on, day after day, smothering me in the weight of a disease I cannot control.

So I shared some of it with you in the hopes the load lightens a little. Thank you for helping me carry it.

Shadowboxer redux…

Today I am meeting with a new Physical Therapist because my last one, though effective, came with an unbelievable amount of drama.

My lovely old friend, the Shadowboxer, is back again in force. I assume the daily stress of my now five+ year long migraine results in me clenching my teeth, which tightens the muscles in my jaw, which triggers my trigeminal nerve, which sends earache pain, sinus pain, and just-slapped-in-the-face pain to my face.

It’s distracting at best and miserable at worst and I will go to virtually any length to reduce the symptoms.

Today that means having yet another person take acupuncture needles and thread them into the trigger points along my jawline and neck and wiggle them until the tight muscles twitch and release.

It’s not a party I really like attending but if it works I will be a happier and better person.

The crush of fall…

I love the fall. It’s by far my favorite season. I love the rain and the mist and the cooler weather and fuzzy sweaters and tea.

Unfortunately the fall doesn’t love me. The rain and mist come with pressure changes that make my head feel as though someone is trying to crush it, unless it feels as though it’s going to explode.

I try to enjoy the fall, I break out my super soft sweaters and leggings first chance I get. I don my ultra thick fuzzy slipper socks and wrap up in my soft pink muppet shawl. I curl up with pets and coffee and try to relax.

It’s just harder to enjoy it. My jaw stabs in little reminders that the pressure is shifting, my head aches with an increased dull throb, and every little sound makes me want to kill.

Winter will be worse. Snow storms bring the worst in pressure changes, pregnant clouds will beat down upon me until finally releasing me when the snow actually falls.

There will be days spent in my room, curled up next to my cat, fireplace on, wishing I could do more.

For today I am pulling in the feelers, retreating into myself.

Up and at ’em…

Things are brewing. My paintings are gaining a modicum of popularity, a complete stranger bought something from my Amazon Handmade page, and Pirate Fest is coming up in about three weeks.

I am determined not to give in to the desire to flounder.

Having said that, I have something I have to do and I admit I don’t want to.

I have to, HAVE TO, treat my body better. I stretch a bit and walk almost every day, but it’s been years since I really pushed myself to exercise. This is really stupid of me because all the literature says the only thing that really helps Fibromyalgia is exercise.

In the past I haven’t exercised as much as I should because I was working. Now I am not. I no longer follow the 40 – 60 hour a week schedule I used to use as an excuse to stay away from the gym.

So my doctors have suggested it, the literature suggests it, I have time for it, why am I not shaking my booty?

I think I’m scared. I think I am afraid I will be disappointed or embarrassed by my limitations, which really is stupid because I’m the only one whose going to be around really so why would I be embarrassed?

Ugh. Maybe it’s just easier to walk and call it good. Who knows. All I do know is the excuses are gone, the medical situation calls for it, and if I am really going to try and manage my symptoms with minimal medication I have no excuses for not exercising my way to a more well managed disease.

So. Swimming twice a week. Crunches every day. 15 minutes of yoga when I wake up and 15 minutes before I go to sleep. Arm exercises with my wrist weights on when I am resting in bed. Then maybe, just maybe, I can get myself to run again.

Time to program the new Vivofit, set myself some goals, and get up and at ’em.

Beset…

Like many spoonies I spend a lot of my time trying not to look sick. It’s not because I don’t trust you to be sympathetic and supportive, it’s mostly because I get sick of my symptoms and want to be able to enjoy whatever event I am attending without paying too much lip service to them.

However, they are always there, hiding in the background and working hard to pull my attention away from your story, the movie, or the amazing meal you cooked. I have to chastise them like poorly behaved toddlers to keep them in line.

Which is why I hate getting sick on top of being chronically ill. That nasty, achy, flu-like, feeling you get with a fever is a daily occurrence thanks to my Fibromyalgia, so when I have an actual fever things suck.

It begins with me feeling like my body is filled with jagged pieces of glass when I move. Everything hurts. Then when I lie still everything hurts. (It turns out lying on jagged pieces of glass isn’t pleasant). Then I will get cold, really cold, deep freezer cold, but the second I pull up the blankets I am boiling hot. Lobster death hot.

At this point I will recognize something else is going on. I will take my temperature, it will be high. I will feel completely and irrationally betrayed by this additional invasion of my already sick body. Shouldn’t I get some kind of “Get of the flu free” card? I have a chronic daily illness, well two actually, shouldn’t that make my body a no fly zone for summer colds, winter flus, and the bacterial crap that hovers around polite society waiting to turn us all into wretched piles of indiscreet bodily functions?

I have become incapable of pushing through colds. I guess it’s because my daily push is so much work that adding the extra layer of suck renders me a wibbly wobbly mess. Every single thing becomes a personal affront to me. I cannot handle the smallest difficulty.

So today, on day two of fever and suck, I feel beset by my illnesses, both chronic and extra. I feel like a presentation exhibit for “What can go wrong with the human body”.