Tag Archives: #spoonie

I got…distracted.

I had intended to return to writing here regularly but then I got distracted by art, and family, health, and pets, the state of the world, and the long list of chores that haven’t gotten done.

I’ve been relearning to love myself as a disabled person. Relearning to view my contributions to the world and my role in it.

Today I learned there is a term for me, dynamically disabled. Someone whose disability ebbs and flows with the vagaries of their body. Someone who can spend three hours deep cleaning the house one day and can barely get out of bed the next.

It’s been difficult learning to manage dynamic disability. It pretty much requires educating nearly everyone in your life to not depend on you. Which sucks. A lot. Especially for those of us who are used to being depended on.

I am getting better at managing me and the world around me. I am by no means perfect at it and I likely never will be. I am getting better.

So I am going to try to start writing again. Here. We’ll see if this time I manage to avoid the distraction.

Life Sentence

sometimes my body feels more like a prison
then it does an instrument for my mind.
i feel trapped within it’s boundaries
too limited by the shattered confines.
there are too many things I cannot do,
too many places I cannot go.
too many times I have to live
when what I want to do is thrive.

sometimes I watch the world through the bars,
these everyday eyes in this routine face.
i seep desire and wistfulness
from these pores pinned in place.
i cancel all the plans i’ve made
and apologize to the ones who’ve stayed
to love the person who is trapped inside
this fleshy prison where i reside.

—- m.morehead 2022

In the dark…

Welcome to Season 2 – The Spice of Life SavvySpoons – Living a life of limited spell slots.

Misty welcomes you back to her podcast. Which she totally stopped recording because of a seasonal break or some other intentional reason instead of basic overwhelmed spoonie forgetfulness. Totally.¬† — Send in a voice message: https://podcasters.spotify.com/pod/show/savvyspoons/message
  1. Welcome to Season 2 – The Spice of Life
  2. Simply Do.
  3. Ignore your pain, then write about it.
  4. I'm back?
  5. Your Body, Your Funeral