Good morning. Do you have a minute to sit down to coffee with me?
Today my coffee is black, as per usual, and lukewarm because I spent time researching online before drinking it.
If we were having coffee this morning I would smile at you and tell you I played games last night with Dan and Scott and we had a great time. I made a lamb curry for dinner, we drank Angry Orchard, and we played Quarriors and 7 Wonders. Scott repaired my KitchenAid mixer and brought it back to me, and showed off the new backpack he made from pickle buckets. We brainstormed creating appropriate webbing for the back of it. It was a lovely time.
I would tell you that the attacks are getting a lot more frequent. Sometimes I have them every ten minutes. It’s exhausting. I find it hard to do much of anything with so much of my energy being pulled out of my by pain. The sensitivity has gotten worse too. Now eating and drinking cause attacks, as well as breathing sometimes. I am struggling. It sucks. I am holding on.
I get up in the morning after a full night’s sleep and I make the bed. I dress. I eat something, even if it’s only a protein shake. Then I see how many doctors appointments I have that day. If I don’t have any, I will work on something or if I am especially tired I will read or play a game. I try to exercise every day.
I would tell you I am getting hopeful about pain camp. One more week and I should be in a hospital in Michigan, finding some solution to all of this. I should come out of the hospital with a working medicine regimen that manages all of this so I can get back to a full life.
Then I would ask you how you are. I would ask you to please tell me about your life. All of it. Every detail. Being here is so isolating. People are busy living their full lives, something I am so happy they are able to do. I watch them, and I count myself lucky when they take the time to make me a part of them. Sometimes they express guilt for complaining. Please complain! I want to hear it! So much!
So, complain below, please. Tell me something. Anything. 🙂
Inspired by posts from LuckyNumber13.