Category Archives: health

Chronic pain, fibromyalgia, Food, Healing, health, Migraine, Trigeminal neuralgia

What is with the weather…?

Leave a comment

There is some sort of weather ‘ledge’ here on the front range that is sending my body into a tizzy of confuddled circles trying to decide exactly how fucked up I should be.

It kind of sucks actually. My face is dancing it’s little spiky-heeled tango on the left side of my head and my scalp is super sensitive and my joints can’t decide if they are weak or stiff or just in pain.

I mean, it’s bad enough that my body wants to belong to the club of “medical science just doesn’t get me” but now the weather does too?

Can I sue climate change deniers for personal damages now that the global climate change is making my body crazy?

…

Sorry, lawyer brain went off on a trip at that one. I’m back now.

It just seems unfair that the weather on a good day can make me feel shitty so when I’m all “It’s my year to get understand my body” the weather is all “hold my beer” and then the beer is actually a multi-week long storm front that stays at the ice-pick stabby stage for the whole damned time instead of having some sort of precipitation that fixes it for me.

Anyway, despite Mx. Weather being an asshole I managed to box yesterday and walk briskly this morning. On track for moving my butt around and creating brand new small nerve fibers to combat this stupid syndrome of mine.

I also made an appointment for a surgery to correct whatever is going on with my small intestine and the scar tissue from my hysterectomy.

Then I made a cake, because I wanted one. I put beets in it though because I wanted to be healthy.*

So, I’ve completed two days of my new plan. I’m doing what I can to feel better.

* Also possibly because I am insane. However, six other people have tried this beet cake and declared it good so I am not the only insane one out there. It’s a bit like a carrot cake had a baby with a zucchini bread but was bitter about it.

That’s all for today loves, stay safe out there.

Oh my goodness, I almost forgot. Here’s a link to those Valentine’s ECards my haiku are featured in. I’d be honored if you would pop over and check them out. I believe you get to send up to five cards for each donation.

health, Just me

Taking it a sip at a time…

Leave a comment

You know sucks? Adhesions.

I have them because a rather violent attack of ovarian cysts resulted in a radical hysterectomy in my mid thirties.

I knew removing a few organs would leave some lasting scars but I didn’t know my wiggly and adventurous lower intestines would someday wind themselves around one of those scars causing me to regurgitate food more than I would like.

I thought it was a stomach flu until I spent my first night at the hospital waiting to see if they needed to whisk me into surgery. It wasn’t until that delightful 24 hours of not eating or drinking that I understood several important facts.

A. Intestines move around. Who knew? I mean, my elbow doesn’t just one day decided to wrap itself around my knee so why would I be expected to know the miles of tubing inside me were closer to snakes than pipes?

B. When you have a partial bowel obstruction eating and drinking becomes complicated.

C. The only cure for an obstruction is not eating or drinking much or surgery. (Thereby causing more adhesions for the wriggly intestines to entwine their clever selves around.)

D. I make good soup. Thank the gods.

So. I eat a diet a toddler would envy. Pudding, Jello, cottage cheese, applesauce, soup. Sometimes bread or a cracker or two. When I don’t, when I dare to dream of salad and beef or a crisp apple, I have days of discomfort until I once again provide my body with what amounts to predigested foods.

I could eat a more adult diet if I was able to chew each bite a minimum of 20 times but with atypical facial pain I am unable to manage that for more than a meal every few days.

So I am taking one sip at a time. Possibly forever.

New life goals? Soup’s on the Brain – a cookbook for those who can’t chew.

#chronicpain, #fibromyalgia, #headache, #migraine, #spoonie, #spoons, Another Fucking Growth Opportunity, Chronic pain, fibromyalgia, health, Spoonie, Spoons, Trigeminal Neuralgia

Life without Margin…

Leave a comment

It was supposed to be a day of rest. Having come off of two days of high energy and low pain levels I knew another flare was coming. I planned to do a load of laundry, sit in the car while my newly permitted teen drove, and make a good dinner. The rest of the day was to be spent expending as little energy as possible and dealing with the aches and pains of activity.

I had my coffee, I took out the dog. The pain level wasn’t too terribly bad, about a 6. All over body aches, joint pain, headache. Your basic flu feeling.

I came upstairs to luxuriate in my bed, watch a show – my hands hurt too much to hold a book up for reading – and snuggle my dog. I came up stairs slowly, muscles aching with each step. I came to the door and low and behold there was my cat, peeing on my bed.

Suddenly my day of rest became stripping the bed linens off to see if her commentary had soaked through to the mattress protector underneath. It had. Then it was gathering up the whole kit and kaboodle, getting it into baskets, getting out a fresh protector, fresh linens, new blankets. Of course everything was on different floors of the three story house because laundry is in the basement and I live on the highest floor.

Up down, up down… can’t keep going. Get the sheets on… get the blanket on… kiddo, please help me with the pillows.
I’ll pay you to do the rest.

And I’m done.

Living with chronic pain is like living paycheck to paycheck. You may do just fine so long as everything happens as expected, so long as you can forgo some things and appropriately prioritize others.

However, as soon as the unexpected strikes you are borrowing on credit and you will have to pay for the expenses another day, or several other days. As for interest, you can push yourself into another flare up and lose days, weeks, sometimes more to lowered energy levels, high pain, medication side effects, etc.

It’s life without a margin, without a safety net and believe me, it sucks.