Fading out…

I missed the huge Memorial Day BBQ my friends were having.

I wanted to go. I wanted to see everyone. I just couldn’t. I thought about a room filled with dozens of people laughing and talking over each other, children running around and playing, music, etc. I thought about myself, sitting in a corner, watching it all happen around me as my headache slowly began to build to an intolerable level.

My photophobia and phonophobia are such that I can’t be at large, loud parties without developing a debilitating headache within about an hour.

It’s been 8 months of headaches every day and I feel myself fading out of friend groups, excursions, and social life.

It makes me so sad and angry and frustrated. I want to be at the big loud parties, the group events. I want to share in the moments these beloved people are making together. It’s yet another thing that I feel has been taken from me.

I am disappearing from the world I used to belong to.

It’s raining it’s pouring…

I am trying not to feel as though the weather is out to get me. Each day I wake up powerless to improve my migraine because another pressure system is messing with my head. Literally.

I am trying to find positive things about the rain. I remember how much we usually need water this time of year, I sit in the garden and watch my plants soak up the rain, I listen to the birds splashing in puddles. I try not to hate the rain. Sometimes I even succeed.

I even walk in it, to and from the office. It’s an attempt to combine going to work with waking up and getting exercise. It’s not the easiest thing to start but the great thing about walking is that once you begin all you have to do is put one foot in front of the other until you finish. In the past few days I have let my fancy fly as I plod along to work one block at a time. I have made up non-profit ideas, imagined what I will do for my 40th birthday, and more. It’s a quiet reflective time for me. Best of all, I feel better when I am walking. Slightly. Until I stop. I suppose I could just live life on a treadmill. Can a person sleepwalk intentionally?

Until the weather breaks and the sun comes out I will do my best to ignore the sense of pressure in my head. In the meantime I long for dry, hot days without a cloud in the sky.

Managing life with chronic illness requires savvy spoons