Chronic pain, fibromyalgia, Food, Healing, health, Migraine, Trigeminal neuralgia

What is with the weather…?

February 5, 2021 Savvy Spoonie Leave a comment

There is some sort of weather ‘ledge’ here on the front range that is sending my body into a tizzy of confuddled circles trying to decide exactly how fucked up I should be.

It kind of sucks actually. My face is dancing it’s little spiky-heeled tango on the left side of my head and my scalp is super sensitive and my joints can’t decide if they are weak or stiff or just in pain.

I mean, it’s bad enough that my body wants to belong to the club of “medical science just doesn’t get me” but now the weather does too?

Can I sue climate change deniers for personal damages now that the global climate change is making my body crazy?

…

Sorry, lawyer brain went off on a trip at that one. I’m back now.

It just seems unfair that the weather on a good day can make me feel shitty so when I’m all “It’s my year to get understand my body” the weather is all “hold my beer” and then the beer is actually a multi-week long storm front that stays at the ice-pick stabby stage for the whole damned time instead of having some sort of precipitation that fixes it for me.

Anyway, despite Mx. Weather being an asshole I managed to box yesterday and walk briskly this morning. On track for moving my butt around and creating brand new small nerve fibers to combat this stupid syndrome of mine.

I also made an appointment for a surgery to correct whatever is going on with my small intestine and the scar tissue from my hysterectomy.

Then I made a cake, because I wanted one. I put beets in it though because I wanted to be healthy.*

So, I’ve completed two days of my new plan. I’m doing what I can to feel better.

* Also possibly because I am insane. However, six other people have tried this beet cake and declared it good so I am not the only insane one out there. It’s a bit like a carrot cake had a baby with a zucchini bread but was bitter about it.

That’s all for today loves, stay safe out there.

Oh my goodness, I almost forgot. Here’s a link to those Valentine’s ECards my haiku are featured in. I’d be honored if you would pop over and check them out. I believe you get to send up to five cards for each donation.

Another Fucking Growth Opportunity, Chronic pain, fibromyalgia, Poetry, Spoonie, Spoons

A year fit into me…

February 4, 2021 Savvy Spoonie Leave a comment

When I was having my first massage in a long while with Abby I has a transformative experience. It was one of those moments when you aren’t sleeping but you aren’t fully engaged with world and you can reach into your mind and really identify the things you NEED to do with your life.

I discovered what 2021 has to be about for me.

I recently has the discussion with my neurologist that he doesn’t know that there is anything more he can do to help me. I have failed all the drugs currently known to treat fibromyalgia.

So in this coming year I need to learn how to live in a body that is years ahead of help from medical science.

So here is my plan:

Find the things I can do to help myself. These include:
- Exercise on the BoxVR every single day regardless of how much it hurts. Even if it’s only for five minutes. All the research says movement helps fibro.
- Meditate.
- Stretch every day.
- Get a massage a week.
- Lose weight to reduce stress on already stressed joints.
- Be kind to myself.
- Blog about your experience regularly.

I also decided to leave the gallery and work on a book of poetry. I want to write about my experience in a way that makes it accessible to those who don’t understand invisible chronic illnesses.

Finally, I need to take the time I need to love my body. I need to find a way to appreciate what it does for me instead of focusing what it does to me.

So it’s a grandiose plan, but I am hopeful it will help.

At this point, I am my only hope.

Haiku Horizons, poem, Poetry, Spoons, The art of pain, Un-Haiku-th

Poetic bliss…

February 1, 2021 Savvy Spoonie Leave a comment

Poetry and I have a long standing relationship.

When I was a child I spent hours writing poems in journals, sometimes I would even put them to music. Somewhere in my rambling house is a series of journals filled to the brim with the least discerning poetry ever written. Some of it is good, I remember, but most of it is the kind of stuff that makes one think of Sweet Valley High novels.

Then I took a break from poetry. I learned technical wordsmithing and stepped away from the comforting world of creative writing.

Then I discovered Haiku Fridays, right here on this blog, in 2006. I spent a lot of time writing Haiku while my kids played at my feet.

Lately the poetry has been flowing again, demanding attention by waking me up in the middle of the night with fully formed verses demanding a paper and pen.

I’ve given in.

As of the first week of February I am taking a hiatus from the gallery and spending a year collaborating with a sister spoonie on a book of poetry.

To begin the journey I have been honored to have some of my work shared by the Southern Plains Land Trust. You can view it here: https://twitter.com/SouthernPlains/status/1356307578230226944?s=20

You should also keep your eye out for some of those Haiku I was talking up. I created a series of Valentines ecards for a February fundraising campaign.

Stay safe loves.