Tag Archives: Spoonie

Taking it a sip at a time…

You know sucks? Adhesions.

I have them because a rather violent attack of ovarian cysts resulted in a radical hysterectomy in my mid thirties.

I knew removing a few organs would leave some lasting scars but I didn’t know my wiggly and adventurous lower intestines would someday wind themselves around one of those scars causing me to regurgitate food more than I would like.

I thought it was a stomach flu until I spent my first night at the hospital waiting to see if they needed to whisk me into surgery. It wasn’t until that delightful 24 hours of not eating or drinking that I understood several important facts.

A. Intestines move around. Who knew? I mean, my elbow doesn’t just one day decided to wrap itself around my knee so why would I be expected to know the miles of tubing inside me were closer to snakes than pipes?

B. When you have a partial bowel obstruction eating and drinking becomes complicated.

C. The only cure for an obstruction is not eating or drinking much or surgery. (Thereby causing more adhesions for the wriggly intestines to entwine their clever selves around.)

D. I make good soup. Thank the gods.

So. I eat a diet a toddler would envy. Pudding, Jello, cottage cheese, applesauce, soup. Sometimes bread or a cracker or two. When I don’t, when I dare to dream of salad and beef or a crisp apple, I have days of discomfort until I once again provide my body with what amounts to predigested foods.

I could eat a more adult diet if I was able to chew each bite a minimum of 20 times but with atypical facial pain I am unable to manage that for more than a meal every few days.

So I am taking one sip at a time. Possibly forever.

New life goals? Soup’s on the Brain – a cookbook for those who can’t chew.

Shortchanging…

It seems apropos to write about short changing during a coin crisis. Of course, I am writing about a lack of emotional quarters instead of a lack of actual quarters but still, they say timing is everything.

I want to apologize to you for shortchanging you.

I short change you every time you ask how I am feeling. I never share the whole answer with you. I never let you inside that aspect of my life.

This failing of mine comes from a place of love.

You see, I can feel how much I hurt you when you learn how much I hurt. You love me and you don’t want to see me in pain. But you try to support me, you ask how I am and hope with intensity that my answer is “better.”

It rarely is.

That’s the thing about Fibromyalgia. It’s a tenacious little fucker.

I have a problem though. You see, I’ve been shortchanging you for so long that I no longer feel comfortable giving you the full story. I’ve managed to shut myself off from that luxury through my effort to protect you.

And I really, really need you right now.

I am tired.

It’s been a long road of not being okay and there are no exits for me. I am supposed to wake up every day and fight an enemy I cannot see, who is so close to me you cannot separate me from it.

I am so very tired.

I am too tired for words. Too tired to tell you how much I hurt. All of my energy is going into this fight right now. I am less able to friend, to mom, to wife.

I apologize for that.

I would ask that when you ask me how I am and I don’t really tell you, to please assume I am in a bad place and just pour on the love. I’m sorry I can’t ask in a better way, or be more verbose one on one.

I love you.

Broken, not broken enough…

My broken is not broken enough
to get the help I need
to stop the bleed

of endless co-pays and medical bills
of supplement costs
of specialist fees.

any adventure I manage to have
any life I squeeze
any pleasure I tease

from this tattered body and shattered dreams
becomes the reason You see
to refuse the need.

my broken is not broken enough
i should be deteriorating more
lying prone on the floor

or screaming in torment and pain
unable to enjoy a thing
enterally suffering.

my walk with the dog around the block
isn’t a sign that I’m lying
i don’t have to be constantly crying

to need help and support
from my village
it isn’t my intent to pillage

i would work if I could.

You would see the food thrown to the crows
rather than let it slip
through my lips

because it might have been earned with your labor
and You never need a favor
everything You have You worked for.

You personally paid for the street that was laid
for your car to traverse
on your way to work.

And the water You mindlessly drink
from your kitchen sink
comes from your well

dug with your own hands at your own cost
You got nothing from us
never even rode a bus.

My broken isn’t broken enough
to stir empathy
in your heart

You lack the sympathy
to understand
You won’t lend a hand

You are your own man.